Seychelles Patients Association will join teams of health care workers spread out at several strategic locations all over the country this weekend to interact with members of the public on a one-to-one basis to sensitize… More
The suspension of routine Specialist Outpatient Department Clinics at Seychelles Hospital to achieve social distancing has left many older patients and patients with chronic illnesses wondering what to do to see their usual specialists at the time of their scheduled appointments or to have their prescriptions refilled.
While the Health Care Agency certainly has a business continuity plan which also addresses this, that plan has not been widely communicated.
“I do not know where to go now for my thyroid medicine,” says a middle-aged patient.
“We have been edged out! My district clinic doctor does not have any information about my thyroid issue. I cannot easily go there!”
Seychelles Patients Association has received many queries along these lines and has requested a communication from the Health Care Agency as soon as possible.
The Health Care Agency has indicated it understands the concerns raised and will soon explain what alternative arrangements are in place for various categories of patients.
The elderly and patients with chronic illnesses are the most frequent users of health services in Seychelles.
Not only is the COVID-19 illess expected to be harsher on the elderly and the chronically ill, but also it is rearing its ugly head on other aspects of life and health.
For the first time today, members of Seychelles Patients Association joined Cancer Concern Association and many others in the annual march to commemorate World Cancer Day.
The purpose of the march is to mobilize national efforts towards cancer prevention, early diagnosis and treatment. It is also to show solidarity to the patients and their relatives affected by cancer.
Chairperson of Seychelles Patients Association, Dr Bernard Valentin says that Cancer continues to be a major non-communicable disease in Seychelles.
“Cardiovascular diseases are the main causes of death (around 34.0%) followed by cancer (around 18.4% of deaths) and diabetes (around 3.0%),” he said.
Obesity in adults, alcohol consumption, tobacco use and physical inactivity contribute to the cancer pandemic.
According to statistics of the National Cancer Registry, the three most common types of cancer in men in the last five years were prostate cancer (at around 31.6% of the total number of cancers) followed by colorectal cancer (around 13.8%) and cancer of the mouth & pharynx (around 9.6%).
In the female gender, breast cancer is the most common cancer at around 32.8% of the total cancers followed by colorectal at around 12.4% and cervical cancer at around 11.6%.
Several members of Seychelles Patients Association have reiterated that the language barrier between certain foreign doctors and local patients is a major patient safety concern.
“Now that the health system is focusing on improving clinical care quality to begin comparing Seychelles with OECD countries, we need to address language barrier as early as possible” said the member of patients association at this week-end’s annual general meeting on Praslin. “It is a major patient safety matter.”
The management of Seychelles Patients Association concurs with its members that the number of foreign doctors who cannot communicate adequately with patients continues to be a major patient safety issue in Seychelles.
“The most desirable position is for doctors who cannot adequately speak any of the three local languages to be barred from practicing medicine or dentistry in Seychelles,” health professionals and patients alike have argued.
Whilst the law is broad enough to do this, policy has not followed suit, often because of challenges involved in finding an alternative doctor.
“This is not good enough,” argued one member. “Patients’ lives matter. Let’s do whatever it takes to get good doctors, doctors who can speak!” she continued.
“Sonny nou byen!”
2020 has come and, in earnest, Seychelles Patients Association has started its new round of activity.
We are starting off with our annual general meetings. Since our membership is spread over three islands, we will try as much as possible to meet with the members of all three islands in separate meetings and share profound thoughts with them with regard to where the Association should be going throughout 2020 and beyond.
Whilst we will continue to implement the unfinished business of the 2019 workplan, this year we will also try, as much as possible, to delve into innovations so as to make the association as relevant as it can be.
As much as possible, we will try to impact the lives of patients who are hospitalized or are admitted in care institutions. We will look carefully at their environment of care and we will look closely at their basic human rights and to what extent these rights are being respected in the care setting. We will draw lessons from our close observations to drive our advocacy work.
From the feedback we received from the first part of our AGM on Praslin on the 18th January, we will proceed and adopt the words “Sonny Nou Byen” as our tagline, trade mark and business name.
We will invite all our members to be as active as possible. This year, every member must do something for a patient or for several patients.
We hail the new year and we roll up our sleeves for some serious work ahead.
The company presented a cheque of SR20,000 to the Vice Chairperson of Seychelles Patients Association (SPA), Mrs Maizline Esther, on Tuesday 20th August at the Head Office of DoubleClick on the 3rd floor of Orion Mall.
“With this much appreciated donation, SPA will produce short educational videos and other educational materials on patient safety,” says Vice Chairperson Maizline Esther.
“We all know that most of the time, health workers work extremely hard to restore our health and we are indeed grateful to them for that. However, patient safety is extremely important for us as a patient advocacy association.”
“We all want to feel safe when we use a health facility,” reaffirms the Director of DoubleClick, Muditha Gunathilake. “We do not want to be harmed through inattentiveness, negligence or incompetence,” he added. “DoubleClick is happy to help!”
Our greatest disappointment as a patient advocacy and solidarity association is when our fellow citizens present for help at a facility with stage IV cancer. We concur with the Harvard School of Public Health on the following key points about cancer prevention.
Early diagnosis is important, but can you go one better? Can you reduce your risk of getting cancer in the first place? It sounds too good to be true, but it’s not. Scientists at the Harvard School of Public Health estimate that up to 75% of American cancer deaths can be prevented.
1. Avoid tobacco in all its forms, including exposure to secondhand smoke.You don’t have to be an international scientist to understand how you can try to protect yourself and your family. The 10 commandments of cancer prevention are:
2. Eat properly. Reduce your consumption of saturated fat and red meat, which may increase the risk of colon cancer and a more aggressive form of prostate cancer. Increase your consumption of fruits, vegetables, and whole grains.
3. Exercise regularly. Physical activity has been linked to a reduced risk of colon cancer. Exercise also appears to reduce a woman’s risk of breast and possibly reproductive cancers. Exercise will help protect you even if you don’t lose weight.
4. Stay lean. Obesity increases the risk of many forms of cancer. Calories count; if you need to slim down, take in fewer calories and burn more with exercise.
5. If you choose to drink, limit yourself to an average of one drink a day. Excess alcohol increases the risk of cancers of the mouth, larynx (voice box), esophagus (food pipe), liver, and colon; it also increases a woman’s risk of breast cancer. Smoking further increases the risk of many alcohol-induced malignancies.
6. Avoid unnecessary exposure to radiation. Get medical imaging studies only when you need them. Check your home for residential radon, which increases the risk of lung cancer. Protect yourself from ultraviolet radiation in sunlight, which increases the risk of melanomas and other skin cancers. But don’t worry about electromagnetic radiation from high-voltage power lines or radiofrequency radiation from microwaves and cell phones. They do not cause cancer.
7. Avoid exposure to industrial and environmental toxins such as asbestos fibers, benzene, aromatic amines, and polychlorinated biphenyls (PCBs).
8. Avoid infections that contribute to cancer, including hepatitis viruses, HIV, and the human papillomavirus. Many are transmitted sexually or through contaminated needles.
9. Make quality sleep a priority. Admittedly, the evidence linking sleep to cancer is not strong. But poor and insufficient sleep increases is associated with weight gain, which is a cancer risk factor.
10. Get enough vitamin D. Many experts now recommend 800 to 1,000 IU a day, a goal that’s nearly impossible to attain without taking a supplement. Although protection is far from proven, evidence suggests that vitamin D may help reduce the risk of prostate cancer, colon cancer, and other malignancies. But don’t count on other supplements.
Since August 2018, Seychelles Patients Association is undergoing a period of massive renewal.
This renewal will culminate in the conduct of new elections for the Executive Committee in January 2019.
A dynamic new committee of professionals will build on the work undertaken so far.
In April 2018, Marie Bernadette Faure, a health care assistant of the North East Point Health Care Complex won the Ministry of Health’s staff award for person centred care. She was considered by all to be extremely deserving of the award because of her life-long commitment to demonstrating compassion, good communication with patients and colleagues about the care of patients and putting her patients need before her own needs.
A first attempt at being relevant. Members and volunteers stand up to be counted
8th July 2015 will go down in the annals of health care in Seychelles as the day the Seychelles Patients Association officially came into being.
It took just over three months from the day of the first meeting for this success. Founding members of the Association were jubilant as they heard the news from the Chairperson, Dr Bernard Valentin.
“What wonderful news ! A much needed association indeed. We have to speak for all patients regardless who the person is,” said one member.
“Very good news indeed! Congrats to all of us founding members!” said another.